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Horrific Disease Ignored, Unreported in Minority Communities
It is a disease hidden in plain sight. It is a disease that destroys caregivers as certainly as it breaks the patient. There is no cure...
mecfsalert
Oct 5, 20193 min read
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The Deadly Hurt of Loneliness — It Kills
For some Valentine’s Day is a day not of love but of profound, despairing loneliness...
mecfsalert
Feb 12, 20193 min read
6 views
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A Holiday Message for ME/CFS Sufferers and Caregivers
There are two holiday seasons. There is the one of joy, the one I’m lucky to celebrate...
mecfsalert
Dec 24, 20182 min read
15 views
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The Monster Disease Medical Schools Don’t Mention
For 10 long years, I’ve been writing and broadcasting about Chronic Fatigue Syndrome, now called Myalgic Encephalomyelitis (ME)...
mecfsalert
Aug 3, 20183 min read
11 views
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Congress to Hear From an Army of Very Sick Petitioners
A different voice will be heard on Capitol Hill on May 12 to 15: a gentle, sad voice coming not from lobbyists or politicos...
mecfsalert
Apr 13, 20183 min read
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A Movie David Goes Against a Goliath of a Disease
The movie is called “Unrest.” The unrest of the title is one of the many symptoms of Myalgic Encephalomyelitis or CFS...
mecfsalert
Nov 17, 20173 min read
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A Disease That Cries Out for Research as Many Suffer Silently
All diseases are cruel, but some have a refined brutality all their own. One such is Myalgic Encephalomyelitis (ME), also known as CFS...
mecfsalert
Aug 17, 20173 min read
10 views
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Research Funding: Scientists Fear as the Sick Despair
When you are sick, very sick, you wait for medicine to work its magic. But if the disease is ME, you have to wait for it to be invented...
mecfsalert
Apr 28, 20173 min read
5 views
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The People Who Give Us Gifts All Year — the Overcomers
Certain gifts are given to us year in and year out. They are the gifts that keep on giving and they come, to my mind, from people I call...
mecfsalert
Dec 23, 20163 min read
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Underwear Goes on the Outside for Charity
Ronald Davis is a respected professor of biochemistry and genetics at Stanford University, and director of its Genome Technology Center...
mecfsalert
Apr 28, 20163 min read
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Cancer ‘Moonshot’ Has Paltry Dollars, Losers
Whenever the government wants to be seen to be doing something huge, it invokes the Manhattan Project or the moon landing...
mecfsalert
Feb 6, 20163 min read
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Memo: Mothers and Others March on Washington
Since I wrote and spoke about the need for a Washington presence for ME/CFS I’ve received many e-mails which ask, in essence, what next?
mecfsalert
Jun 8, 20143 min read
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A Bold Proposal for a Suffering Community
I consider this a manifesto for the ME/CFS community...
mecfsalert
Apr 30, 20147 min read
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The Shame of Biomedical Research in the U.S.
When the dark shadow of incurable disease settles across a life, it is brightened only by the hope that science is on the job...
mecfsalert
Jan 19, 20143 min read
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Getting a Seat at the Table
Think of this as a primer for all of those, like the sufferers of the awful disease Chronic Fatigue Syndrome, who need to be heard...
mecfsalert
Oct 1, 20133 min read
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A Young Man, a Big Disease and a Big Idea
We expect big ideas to come from young people in computers, social networking and music. In medicine, less so...
mecfsalert
Jun 17, 20133 min read
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A Drug Goes Down in a Perfect Storm
A man you have never heard of is on a hunger strike in Reno, Nev., in a desperate petitioning of the government to do something...
mecfsalert
Feb 7, 20133 min read
4 views
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Florence Nightingale Still Comforting the Sick
It is time to add May 12th to our list of dates worth commemorating-especially for 1 million in the United States who suffer from CFS/ME...
mecfsalert
May 13, 20123 min read
3 views
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CFS: One Disease and Its Costs
What would happen to health care if a million new patients with just one of many now incurable and largely untreated diseases...
mecfsalert
Apr 10, 20123 min read
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Chronic Fatigue Syndrome: Misnamed, Misdiagnosed, Misunderstood
What's in a name? A great deal, if you suffer from one of the most awful long-term diseases that is widespread: chronic fatigue syndrome...
mecfsalert
Jun 11, 20118 min read
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Chronic Fatigue Syndrome to Get Web Television Presence
A new Web-based television program aims to shine a light on Chronic Fatigue Syndrome...
mecfsalert
Jun 7, 20112 min read
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Chronic Fatigue Syndrome: Lives Interrupted
In 2010, I made more friends than in all of my life. They are scattered across the United States and around the world...
mecfsalert
Apr 4, 20114 min read
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CFS: To Suffering, Add Anger
I’ve been walking on the sad side. My mailbox is jammed with dozens of heartrending e-mails from sufferers of Chronic Fatigue Syndrome...
mecfsalert
Oct 8, 20103 min read
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The Awful Disease Washington Forgot
In the end, as with so much else, the fight against disease leads to Washington...
mecfsalert
Sep 21, 20103 min read
11 views
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